Thursday, April 25, 2013

Mono or no mono...that is the question

Today has been filled with a lot of questions and answers we really didn't want. Not that the news was necessarily bad. The news was negative. A negative mono test. This was the one that everybody kind of guessed would be the culprit. So then hepatitis was brought up again. So we went back to our room wondering what would happen next. While we were making our list of questions, S got one of a couple of surprises today. I think I have mentioned the visits from the HABIT dogs. So far we've seen a pink poodle and a beagle. Today we had a visit from a Goldendoodle, Murphy:






S has been missing her Cosby desperately, so Murphy was a sight for sore eyes. The girl was thrilled and got a few sweet kisses, even though Murphy got scolded a bit for doing so. We had a little toddler friend from down the hall spot the dog in our room and come in to visit in his little hospital gown. So sweet. Murphy and owner went on their way and S's face went back to sad. I French braided her hair, which ticked her off even more, so she decided to read her book for a minute. Then guess what? Another surprise. Some people from the Titantic museum came and asked if they could visit S and make her a princess for the day. They all came in their period clothing:



How cool is that?!? This hospital is such a blessing for sure. They do everything they can to make the stay as pleasant as possible. That means so much to us. S's soccer coach, and my friend, came in to visit and tell her not to worry about middle school soccer right now. All good.

When our favorite doctor came in this afternoon, she set us straight on a few things. The mono test did come back negative, but it was one that was ordered before she came into our picture. She is ordering more blood work that will again be sent out and take several days to return. Luckily she doesn't think we will have to wait here until the results come back. Now, if those results come back negative, then she explained we will be looking at more serious autoimmune illnesses. We are praying for mono. Whatever it is, it has been made very clear that her recovery will be a multi-month process. Her return to school will not happen for at least another 1-2 weeks. Yipes. Now her fever went up this evening for the first time since Tuesday and she had to get more pain meds. These are the kind of things that will delay her departure if they don't calm down. Sigh.

I miss my babies at home. I need to squeeze their bodies tight and give them lots of kisses. In a miniscule way, I understand how my friend Leanne, mom to Baby Drew, feels. You feel torn to be with the sick one and torn and guilty being away from the others. Agony. Again, I ask you to pray for them at this time. They are faced with the most difficult of tasks deciding about Drew's possible future. Pray for clarity and wisdom. Pray for rest and pray for their comfort. Night all.
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